Northern Great Plains Oncology Network
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The Northern Great Plains Oncology Network is a network of cancer centers and organizations gathered to address the unique aspects of cancer in the Northern Great Plains. This project is led by the Eppley Cancer Center at the University of Nebraska Medical Center, which is an National Cancer Institute designated cancer center, and the Avera Cancer Institute. The goals of this network are to ultimately develop a national cancer resource and database to impact and influence diagnosis and treatment, and identify therapies which are specific and customized for each patient for personalized treatment and improved survival.
The first project of the Northern Great Plains Oncology Network is the Breast Cancer Network and Collaborative Registry.
The Breast Cancer Network & Collaborative Registry Project
The Eppley Cancer Center at the University of Nebraska Medical Center in collaboration with the Avera Cancer Institute has launched a regional Breast Cancer Network & Collaborative Registry (BCCR). This network and BCCR is designed to unite cancer centers with expertise in breast cancer epidemiology, genetics, biology, early detection and patient care to facilitate rapid and uniform collection of critical information and biological samples to be used in developing prevention and treatment strategies against breast cancer.
The breast registry will compile information from participants at Breast Cancer Network facilities. That information includes personal background information, medical and family history, as well as dietary and environmental exposure history. In conjunction with the medical database, a blood and tissue biospecimen bank has been established as a resource for future research studies. This includes a voluntary biospecimen repository with samples from breast cancer patients, individuals at increased risk for breast cancer, and their family members. A future step is using genomic information collected from the specimens along with other data to create personalized treatment for breast cancer patients.
Ultimate goals of this project are to save lives and enhance quality of life for breast cancer patients.
Learn more about the BCCR
Information collected will be stored on a web-based registry, known as the Breast Cancer Collaborative Registry (BCCR). This is a secure database and was developed by the Bioinformatics Shared Resource at the Eppley Cancer Center. Via health information collected in the questionnaires of this registry, researchers will study:
- Factors that influence the risk of developing breast cancer
- Factors that influence the prognosis of breast cancer patients
- Quality of life of breast cancer patients during and after treatment
- Identification of individuals who might benefit from screening measures to detect breast cancer at an earlier and potentially more treatable stage
- Lifestyle and environmental influences on the development of breast cancer and overall survival
Breast cancer researchers from the Avera Research Institute and UNMC/ The Nebraska Medical Center/Eppley Cancer Center are currently involved in this study. UNMC Eppley Cancer Center is a National Cancer Institute (NCI)-designated cancer center.
Individuals who are at least 19 years old and are willing to provide informed consent may be eligible to participate in this breast cancer registry if they meet any of the following criteria:
- Individuals (male and female) who have a personal diagnosis or history of breast cancer
- Individuals who have characteristics of hereditary breast cancer or who have an increased risk of breast cancer
- Individuals who have a family member who has been diagnosed with breast cancer
- Review and signing of informed consent document
- Completion of project survey either in paper form or online, in the privacy of participant’s own home
- Voluntary submission of blood sample
- Voluntary submission of previous tissue sample for breast cancer participants
Learn more about eligibility